Genetic data is increasingly massively produced and used. Data ownership has become one of the major identifiable issues in bioethics, when it comes to modes and means of this data production and exploitation.
In France, Genetic data are considered as a part of the human body and protected as such. In other countries, they are objects of economic value. Bioethics, through the worldwide use of data medicine, must find the right balance between universalism and contextualism in the search for the common good.
Henri-Corto Stoeklé, PhD and Professor Christian Hervé will discuss their work on the subject during an online workshop on :
April 22, 2021, 5:30-7:30 PM
The 2 hour workshop for G.E.N.E. doctoral and Masters students will be online (Zoom) and free with mandatory registration.
Registration on Eventbrite : https://www.eventbrite.fr/e/billets-gene-workshop-genetic-data-and-bioethical-issues-146596308505
Christian Hervé is professor emeritus in public health at University of Paris in France. He is also the co-president of the International Academy of Medical Ethics and Public Health and the head of the Department of Ethics and Scientific Integrity at Foch Hospital. a pioneer in university teaching of ethics in the Faculties of Medicine in France having created the first teaching of medical and biological ethics at the faculty of medicine Necker-Enfants Malades, Paris. He created the International Institute for Research in Biomedical Ethics in 2000, which is celebrating its twentieth year with regard to the publication of an annual contribution from Dalloz, France. Christian Hervé is president of the French and Francophone Society of Medical Ethics and co-created the International Academy of Medical Ethics and Public Health as well as the journal of the same name at Elsevier, publisher France.
Henri-Corto Stoeklé is Bioethics Fellow in the Department of Ethics and Scientific Integrity at Foch Hospital in France. A biologist by training, graduated with a Master’s degree in Genetics from Paris Diderot University, he has a PhD in Medical Ethics from Paris Descartes University. He was also Research Fellow, in bioethics, at the French National Center of Human Genomics Research. His work focuses on bioethics and scientific integrity, from an epistemological, methodological and applied point of view, particularly in life sciences and medicine. Since 2016, he is the co-author of various articles published in international scientific journals specializing in bioethics and medical ethics.